Liveblogging Open Science Summit-Open Source Drug Discovery
Jul31

Liveblogging Open Science Summit-Open Source Drug Discovery

12:46:59 PM: Hi from Berkeley, California- I'm at the Open Science Summit http://bit.ly/b4NRq1. Tweets on open innovation and drug discovery to follow!12:51:12 PM: Aiden Hollis of Yale's Health Impact Fund is first http://bit.ly/Msd2N.12:53:00 PM: Fund aims to reward pharma co's based on drugs' health impact, if companies agree to sell at cost. Financing would come from government.12:58:32 PM: Health Impact Fund is planning a pilot project- but companies, countries, and drugs to be involved weren't specified. #oss201012:59:54 PM: RT @uaem: Jamie Love, from here: http://bit.ly/cKAEcn talking re: prizes to de-link cost of R&D from the cost of the final product #oss20101:05:11 PM: Love is again talking about rewarding a drug's 'health impact'. This is nebulous to me. How do you measure this impact a priori? #oss20101:15:04 PM: RT @OrthoNormalRuss: @carmendrahl when someone makes such vague assertions, they call them "details to be hashed out later" by some agency1:16:56 PM: Love's talk was rich in econ-speak but vague on details- more may be found here: http://bit.ly/9UGbPL in a comment sent to WHO #oss20101:27:35 PM: Columbia U GS @OrthoNormalRuss is sad this session didn't really deliver novel alternatives for R&D funding- same old gov't $$ arguments.1:39:15 PM: If you'd like to follow the Summit live you can at http://bit.ly/d2t4JC #oss2010 (Thx to Lisa Green, Creative Commons @boudicca for link)1:48:19 PM: Next session is called 'Cure Entrepreneurs': first speaker is Scott Johnson, prez of Myelin Repair Foundation. http://bit.ly/7VK9K1:52:03 PM: RT @mrgunn: Patient activism session up now. These folks tend to be passionate, so tune in now. #oss20101:54:46 PM: Johnson is describing the gap that exists between basic academic research, and research in pharma that leads to medications.1:58:33 PM: Johnson sees nonprofits like Myelin Found. as a shepherd-herd molecules through R&D through the approval process.2:04:34 PM: Myelin Foundation currently funding ~45 scientists. Universities own any patents, foundation has exclusive development rights.2:06:22 PM: Johnson says it's hard to get federal funding for developing tools and models for myelin repair research. Really? #oss20102:08:54 PM: Johnson-1st patent from these efforts awarded in 2008. A partnership with a pharma company (unnamed) has also been initiated.2:11:40 PM: Myelin repair drugs would treat multiple sclerosis: read @lisamjarvis #CENews story on race to new MS drugs http://bit.ly/9Iaz7N #oss20102:14:18 PM: Next: Craig Benson, founder of foundation to accelerate treatments for Batten Disease, rare neurodegenerative disease http://bit.ly/9eM05S2:19:38 PM: Among Beyond Batten's goals: developing accessible screens to test for carriers of orphan diseases like Batten2:21:09 PM: Benson has a daughter with Batten Disease. Johnson has multiple sclerosis.2:28:01 PM: Benson-Foundation dev'd a universal carrier screening test for 450 orphan diseases for under $500. Product launch planned for 2011 #oss20102:34:12 PM: More details on Benson...

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